On Sexuality, Disability & Mental Health; or Sustainable Living

From when I was a child, I can remember wanting my Mum to be better, wanting to make her happy. It was perhaps the strongest emotional drive in me. Long before she was diagnosed with MS, I knew she was deeply unhappy, which was expressed mainly through her anger. I wanted her to be ok. It was what I wished for when I blew out the candles, or the tooth fairy visited.

So now I attract partners, sometimes friends that I would like to fix. Habit.

Mum did get better. Not physically, but emotionally she is the most reliably happy person in the family. Definitely not angry. To be fair Seroxat has a lot to do with that, but so does my Father’s unerring loving care towards her. Truly in my experience anti-depressants have never suited a person so well. I think knowing she will never move her body again by herself, gives her conscience clear reign at accepting the drugs. Inside she is very sad at what has become of her, but that is successfully suppressed, and she shows immense gratitude for all she does have, always professing sheer joy in her state of being. As well as the suppression of pain, there is the countering effect of transformation, and I do mean spiritual. Mum knows that in the height of her youth and health, she was unable to appreciate what she had, so dogged was she by anger and lack of confidence. Now that she has lost the use of limbs, sometimes eyes, sometimes mind; she knows more keenly what she had previously, but much more than the value of these physical aids, she is now open to love in her life in a way which she never was before. Most people I know on anti-depressants still get depressed, but not Mum. They really work with her, year after year.

from a recent Drawing Theatre session I did with Paul Kindersley

from a recent Drawing Theatre session I did with Paul Kindersley

On Wednesday 7th August, Mum will be modelling with Spirited Bodies, and this time (she took part before clothed for portrait with Dad) she will be nude. She is really excited about this, saying that although she doesn’t particularly think her body is beautiful, the idea that people will spend time drawing her is very incredible and uplifting. She says it feels like a gift, and she recognises she may be a role model for other disabled people to take part in future. She may not have a wide pose range, but my Goodness can she hold still.

I still have issues on occasion about being asked to look after her. Doesn’t happen very often. I am busy in my life, the other side of London, whizzing this way and that, my parents have their routine and I don’t see them a lot. My brother and sister are much closer to home. I would resent caring for my Mother as I felt I lost a number of years due to her earlier negativity, lack of love for me. On top of this, I have in recent years felt as if I have lost my Father for the enormous task of taking care of Mum. He is exhausted and needs every bit of free non-family time for himself. So I raised this point not long ago, and now we are in the process of reclaiming that forgotten Father/Daughter relationship which may be the precedent for some of the most crucial relationships I form.

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Spirited Bodies is a challenge to keep flourishing – sometimes I recognise in writing the familiar spiel in emails and documents, I have lost some of the necessary passion and zeal to lift this off the ground. Become normal, ordinary, I forget how magical it is! Others in the team get judged by family for putting so much time into life modelling and this project, when before they held high earning jobs, keeping their families in the trappings they are accustomed. This is a real test on relationships, for loved ones to see past the financial value, and appreciate what it is that makes them happy. In our case life modelling and taking that further to others.

model Kayleigh

model Kayleigh

This societal/monetary pressure is a most damaging force, an unfortunate reckoner, and in this respect I am grateful for my rebellious youth which long ago set a precedent for not being expected to achieve or earn in a certain way. And I surround myself with people who understand that and do not judge me for my nude activities. It can be a harsh shock when I find myself in less than usual territory in the company of ‘normals’! But I am getting better at it.

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Attracting a damaged mate has opened up a new vista as I retread the possibilities of more open relationship. I am a dynamic being full of expression and desire, so a physically weaker character with whom I fell in love, cannot hold permanently my capacity. I was getting desperate, thought of splitting up – but we didn’t really want that. I entertained the idea of becoming a surrogate – offering myself for the (sexual) healing of others and my financial gain, but it didn’t quite click. I thought of exercising after long, long pause the lesbian in me, and here I hit a note. I realised my experience of cunt has been so much more limited than mine of cock, and all related hormones. I thought how empowering to feel comfortable with cunt, to know others’ and their ways, not just my own. To know them intimately. Last time I investigated I would have been on drugs or pissed; there was room for so much more exploration. And breasts – if you do not have large ones yourself, how wonderful to feel another’s pendulous pair!

Kayleigh is not my lover, but I love these pictures and wanted to use them

Of all the possibilities this seemed least threatening to my boyfriend, or most reasonable. There is also a feminist argument for it. Men remain so tightly bonded by comparison, and we women must catch up if ever we are to match status. My boyfriend is appreciative of this sentiment.

And so I found myself another lover, and what a difference it makes. She has a delicate touch, so sensual; I feel new with her and myself opening with abandon. I feel such gratitude for this amazing opportunity to be intimate with two people, and I am much more thoughtful and peaceful with my boyfriend as a result. I want to cherish him more and show appreciation for his understanding. Before he felt burdened to try to keep up with my numerous social activities which of course he could not begin to; now this obligation is shared! Both my boyfriend and my girlfriend have varying degrees of social phobia, but spurred on by the prospect of keeping up each of their sides of the bargain, we find harmony. Finally I might not turn up almost everywhere alone (despite having someone at home for me), which sometimes created an awkward impression. Now I can really keep my friends guessing!

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On Mental Health: (because recent events have brought me closer to the realm of mental health concerning others)

I learnt young that falling into the system could be damaging. I saw my Grand-Mother drugged in a corner, barely present, except on wild occasion as she stopped her meds, and released the wacky conversations with ghosts in the room. Decades of drugs, Electric-Shock Treatment and institutionalisation took care of her (paranoid schizophrenic) but she looked so innocent to me. She had been the first woman in her town in Lancashire to get into Oxford University where she read English, and met her husband, a colonial type of the old boys network. She had once been very intelligent, not at all ‘mad’, but something had driven her to insanity. After my Grandparents died, old family friends revealed that Grandpa’s blatant affairs had been the trigger; whilst they were living out in Africa, far from her home, and her alone with the children.

As a child I considered; if I was mad and I probably am, I never wanted any authority to get hold of me. The world is mad obviously, so I’d rather take care of myself. I appreciate this doesn’t work for everyone, and that the system though far from perfect, has moved on from ’50s strategies.

I’ve never been attracted to men of a certain class either.

I just wanted to use these lovely pictures which have no direct relation to the post

I just wanted to use these lovely pictures which have no direct relation to the post

Spirited Bodies is proud to be part of The Sex Maniacs Ball in September, which is a fundraising event for The Outsiders Trust to enable disabled people to meet partners and celebrate their sexuality. There may be a life modelling workshop, as well as a nude disco along with various other nude activities and therapies.

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5 thoughts on “On Sexuality, Disability & Mental Health; or Sustainable Living

  1. I’ve only just read this latest blog, and I found it very moving. Your openness, your honesty and willingness to share your innermost thoughts and feelings with your readers and to lay bare the emotions behind them make for very intense and uplifting reading. Good luck in your decisions, I admire your willingness to make your own choices, to go with what is right for you and not be tied to what society as a whole does or does not approve of. Your comments on disability resonated with me as my own mother died not too long ago after years of steadily worsening dementia which robbed her of so much mental capacity. I feel very sympathetic to the aims of the Outsiders Trust and often think I’d like to help myself, although it appears that one has to be disabled oneself to actually join and help people. I would have thought there would be more openings for able bodied helpers to give their time to help disabled people cope. I loved the idea of life drawing in a retirement home which I believe you once wrote about, and wondered if one couldn’t do something similar for the disabled (doesn’t matter if they can’t draw, just so long as they enjoyed it) but I guess you need some contacts already in place in order to set it up.

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    • Thank you for your positive comments Lee. Being unusually revealing in my post moved me somehow, and in a good way I will add.
      I haven’t forgotten the idea of taking life drawing to the elderly; thank you for reminding me again.
      With Outsiders I guess they must be very cautious about who joins up to help, but am sure there is a way if one is committed. Just may take a while to find how one fits into any organisation, or it may be you find other opportunities to be of service whether of your own making or through other groups. You are right, contacts make all the difference as then one is trusted and has an opening. It is possible to make opportunities as well. My sister is a dancer and thought to take her dancing into homes for the elderly for them to enjoy. She gets quite a few bookings, initially from her visiting the homes and suggesting the idea. Once she has danced there then word of mouth comes into play. Good luck!

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